Fourth Expert Webinar organized together with Chiesi

Chiesi offered an expert webinar on Optimizing care of people with rare diseases: The importance of good communication between patients, families and healthcare professionals

If you missed the live event broadcasted on December 3, you can see the webcast of this very interesting EXPERT WEBINAR organized together with CHIESI using this LINK. 

PROGRAM

Talk
Professor Doctor Karin Lange
Department of Medical Psychology, Hannover Medical School, Hannover, Germany

Q&A
Professor Doctor Karin Lange
Department of Medical Psychology, Hannover Medical School, Hannover, Germany
Bob Stevens. (Moderator)
Group Chief Executive Officer – MPS Society & MPS Commercial

We hope this has helped the MPS community stay up to date on industry developments & news!

This meeting is initiated, funded and developed by Chiesi. Copyright 2020 Chiesi. All rights reserved.

2020-12-04 00:00:00

Third Expert Webinar organized together with Ultragenyx

Ultragenyx offered an expert webinar on “MPS VII: Diagnostic Challenges and New Data on Clinical Management”

If you missed the live event broadcasted on November 18, you can see the webcast of this very interesting EXPERT WEBINAR organized together with ULTRAGENYX using this LINK. Please note that the webcast is offered in English, Spanish & Portuguese, so you can choose your prefered language!

PROGRAM

Welcome and introduction
Dr. Roberto Giugliani
Full Professor, Department of Genetics, UFRGS, Brazil
Medical Geneticist, Hospital de Clinicas de Porto Alegre, Brazil

MPS VII clinical overview and diagnostic challenges
Dr. Roberto Giugliani

Vestronidase alfa long term extension study results
Dr. Raymond Y. Wang, M.D.
Clinical and Biochemical Geneticist
CHOC Children’s Hospital, Orange, CA, USA
Department of Pediatrics, University of California-Irvine School of Medicine

Long-Term Safety & Efficacy of vestronidase alfa in children <5 years of age
Dr. Antonio González Meneses
Dysmorfology and Metabolism Unit
National Reference Center for Metabolic Diseases
Hospital Universitario Virgen del Rocío, Sevilla

Long-Term Safety & Efficacy of vestronidase alfa in children
Dr. Roberto Giugliani

Panel discussion on DMP experience so far
Dr. Giugliani, Dr. Wang and Dr. González Meneses

Q&A Session
All

We hope this has helped the MPS community stay up to date on industry developments & news!

This meeting is initiated, funded and developed by Ultragenyx. Copyright 2020 Ultragenyx. All rights reserved.

2020-11-19 00:00:00